Research is an essential part of being a changemaker. Research forms the foundation for effective global rehabilitative programs. It allows us to fill in knowledge gaps and to discover the answers to questions such as, “Why have fall statistics remained unchanged over the past 25 years?”
In 2013, Mariette was diagnosed with Parkinson’s disease. This year, she received 21 sessions of virtual coaching and consulting from Motorvation which was funded by the Parkinson’s Foundation. She received an additional 10 sessions funded by Roger and Delores Odell private trust. Mariette completed her sessions and made tremendous improvements in motor control and motor learning. She was dedicated, determined, and prepared every session. She took notes, played back videos, and asked questions. She was able to learn how to observe. This skill translated into her own practice as a volunteer coach who runs a group boxing fitness class for People with Parkinson’s in the Netherlands. The Roger and Delores Odell private trust recently funded multiple consulting sessions with Mariette and her group class at ParkinsonSport.nl She videos each 90-minute session, I review it, and then the two of us go over ways to improve on everything from beginning to end. I am able to see personalities based on movement and observations rather than language. (I don’t speak dutch ) Mariette is learning how to help others with tools she learned through the Motorvation system while continuing to improve and grow as an athlete.
The Roger and Delores Odell private trust funded consulting sessions to help bring a boxing program implementing Motorvation’s Methodologies into the Texas Panhandle. I coached Dennis Nichols from 2017 to 2019 in Las Vegas. In 2019, he moved to Amarillo Texas and continued training at Nick’s Fight Club. This was not a Parkinson’s program; however, Dennis developed so much skill and control with really understanding boxing biomechanics and footwork that he was able to fit right in and excel. During Covid the gyms closed down and Dennis took a few steps backwards. Perseverance led him back into Nick’s Fight Club in April of this year where he met Bobby Murray, a coach and athlete training out of the gym in addition to being the gym’s new owner. Dennis and another individual inspired Bobby to develop a program specifically for Parkinson’s disease. Bobby and I were introduced in June of 2021. We have been meeting online to build the confidence to market and expand to the program with the proper foundational knowledge.
Motorvation is providing 20 individuals in North Dakota to receive 18 hours worth of virtual fall prevention training. We know that people with Parkinson's in rural communities are under-represented in research studies due to limited access to specialized care, limited ability to exercise, in addition to social isolation, and lack of community support. We aim to test the feasibility of virtual coaching and consulting to determine a signal of efficacy for preventing falls, reducing anxiety, and overcoming apathy.
These 960 sessions have been critical in providing insight into real world application while influencing the development of future programs. There are a multitude of variables that must first be addressed to fully maximize the benefits of exercise. Comorbidities of Parkinson's disease as well as normal aging decline which are many times intensified by the disease may create a domino effect that negatively impact the consistency of exercise, injury prevention, and the transfer of learning. We have taken an individual centered approach